Advocacy, Special Needs

Intro. Welcome!

Hello everyone! And welcome to my blog, Catching Kaydence. I am so excited to get this up and going so that we can continue to connect with more people, and share our story.

This blog will revolve around our special needs parenting journey. Everything from our personal journey to resources for families like ours! I needed an outlet. I needed a way to share our story in a way that would reach those who may need to hear that they are not alone. A way to share our story with family and friends, and lastly, a way to connect.

Many know our background and at least a little about Kaydence, so here is the short version. (I will be making a separate blog post to share our story from birth to now). Kaydence is now 7, and oh what an adventure it has been. She is diagnosed with Cornelia de Lange Syndrome (CdLS), a rare genetic disorder, leaving her with significant developmental and intellectual disabilities. She is non verbal, and relies on a g-tube for medications and to supplement liquid intake. Her journey is not one for the faint of heart. My little girl has been through hell and back in her 7 years of life, but she is so strong, and continues to amaze me every single day!

If it was not for Kaydence I would not be where I am today. My passion for the special needs community has grown into my life’s work. I am an advocate for parents going through the IEP process. I have also spent the last 5 years working with adults with disabilities. Lastly, we are adult foster care providers. We decided to open up our home to adults with disabilities and be full time caregivers through a foster care program. All of these things have been such a blessing in one way or another and I can not wait to start sharing with all of you!

Thank you so much for reading! Please take a moment to follow Catching Kaydence so you can be a part of our journey!


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